These are links I have found helpful for information about Lyme disease, its effects on children, scientific controversy about tick-borne illness, and treatment.
My family's Experience with Lyme
Lyme disease and Children:
- http://lymedisease.org/resources/children.html
This Lymedisease.org page has a thorough description of the less well-known symptoms of Lyme in kids, including learning disabilities, mood swings and hyperactivity.
- http://www.lymefamilies.com/wpcontent/uploads/2009/07/How_Lyme_Affects_Learning.pdf
Sandy Berenbaum, a counselor who works with families affected by Lyme disease, describes the cases that helped her understand that some children with severe psychological diagnosis actually had tick-borne infections.
- http://www.lymefamilies.com/wpcontent/uploads/2009/07/Lyme_in_the_family.pdf
An overview of the experience of pediatric Lyme disease, and how it affects children and families. This link includes parenting strategies, and suggestions for communicating effectively about Lyme disease.
- www.lymedisease.org/lyme-basics/lyme-disease/children
A physician’s story about the effects of Tick-borne illness on children’s mood, cognitive functioning and personality.
- http://www2.lymenet.org/domino/file.nsf/UID/pietrucha
A pediatric neurologist describes symptoms of neurological tick-borne infection in children, based on years of experience in practice. Case studies are included.
Treatment of Lyme disease and Related Illness:
- http://www.ilads.org/
The International Lyme and Associated Diseases Society (ILADS) is a primary site for ‘Lyme Literate’ professionals, and a source for up-to-date information on Lyme and other tick-borne diseases that is not available on the CDC or IDSA governmental sites.
- http://www.columbia-lyme.org/
Columbia University Medical Center’s ‘Lyme and Tick-borne Disease Research Center’ website offers information for patients as well as news about the latest research.
- http://www.lymedisease.org/
Lymedisease.org is an advocacy organization. Their website veers into the politics of Lyme, but also has excellent and thorough resources. Their site has two blogs: one sharing the experiences of people affected by Lyme disease, and a second discussing the latest policy changes in tick-borne medicine and testing.
- http://www.cangetbetter.com/
Dr. Richard Horowitz discusses the complexity of tick-borne infections, and offers resources from his book Why Can’t I get Better – Solving the Mystery of Lyme and Chronic Disease.